2019 Volunteer Leadership Conference

Mar 29, 2019 ‐ Mar 30, 2019



Sessions

teamMATEs Celebration Luncheon

Mar 30, 2019 11:45am ‐ Mar 30, 2019 1:00pm

teamMATEs will celebrate all we’ve achieved in the past year and look forward to the year to come.


Hot Topics Session 2Hot Topics Session 2

Preview Available

Hot Topics Session 2

Mar 30, 2019 1:15pm ‐ Mar 30, 2019 2:15pm


Infection Research Initiative

Mar 30, 2019 1:15pm ‐ Mar 30, 2019 2:15pm

Dara Riva, director of clinical research awards, will discuss the new Infection Research Initiative and describe the six focus areas included in the Initiative, as well as provide some examples of infection research currently underway.

Speaker(s):
  • Dara Riva, MS, Director of Clinical Research Awards

Mental Health

Mar 30, 2019 1:15pm ‐ Mar 30, 2019 2:15pm

Living with CF, or caring for someone with CF, can be emotionally challenging. Learn about what the Foundation is doing to support emotional wellness from Paula Lomas, director of clinical communications, and a volunteer member of the Mental Health Advisory Committee.

Speaker(s):
  • Paula Lomas, MAS, RN, CCRP, Director of Clinical Communications

Nonsense and Rare Mutations: Tackling Nonsense and Rare Mutations in CFTR

Mar 30, 2019 1:15pm ‐ Mar 30, 2019 2:15pm

JP Clancy, MD, senior director of clinical research, will discuss current research being done to treat CF caused by nonsense-mediated mutations and other rare CFTR mutations.

Speaker(s):
  • JP Clancy, MD, Senior Medical Director, Clinical Research

New Therapies and Clinical Trials

Mar 30, 2019 1:15pm ‐ Mar 30, 2019 2:15pm

Michael P. Boyle, MD, senior vice president of therapeutics development and Tony Durmowicz, MD, vice president of clinical development, will discuss emerging therapies as well as ongoing and upcoming clinical trials. Special attention will be paid to updates regarding next-generation CFTR modulators.

Speaker(s):

Closing

Mar 30, 2019 2:30pm ‐ Mar 30, 2019 3:00pm

Maureen Fraser, senior vice president of field management, Molly Riley, vice president of volunteer and donor engagement, and our co-chairs Pam Baker and Justin Davis will close out the 2019 Volunteer Leadership Conference.

Speaker(s):
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